When I created OST in 2014, it was made to empower dancers in their own bodies, and help them recover and prevent injuries. In 2015, I was diagnosed with Ehlers Danlos Syndrome which is a progressive connective tissue disorder, that causes your body to produce faulty collagen. This affects anywhere connective tissue is present which is everywhere (skin, ligaments, organs, etc.) I was dealing with frequent joint dislocations but was able to be on crutches and continue to coach.
In the last week OSTSI 2017, my hip dislocated and that was a major setback. I continued to work on crutches and prepare dancers for the 2018 YAGP Season ahead. That January, my shoulders gave out and I had to move into a wheelchair.
The Ehlers Danlos has progressed faster than we ever could have anticipated. For the past year, I have been in the hospital a couple days per week trying to combat the symptoms and cormorbid conditions that EDS causes. This February, I was moved to home care, and I had hoped that by being able to do all my IV’s and medications/treatments at home that I would be able to virtually run OST, but that is not the case.
I enjoyed every minute working with all of you and I am happy to help you with anything you may need in the future. If you need an injury consult or copies of your former personal HEP, I am happy to help in any way I can. We worked hard to think through what we could still do with OST considering where I am at and projected to be heading medically, but ultimately we know my full time job needs to be taking care of my body.
It breaks my heart to bring this to an end, but after much deliberation Jared, my medical team, and I decided this was what needed to happen. Thank you for all your support over the years, and thank you for giving me something that makes saying goodbye so hard.
If you need anything please feel free to email me at my new email (as this one will be gone when the website goes down) you can send it to:
Thank you for being a part of OST, Jared and I loved being able to be apart of your journey. If you want to keep up with my journey against EDS, you can find me at www.livingthechronicillnesslife.com.
I wish you all the best,
Cassie M. Nolin